Taking care of Charly is a full time job. She requires a lot of attention, diaper changes, physical therapy, g-tube cares, feedings, etc, etc. I have been a little overwhelmed with working, taking care of Charly, being Jaxon's mom, and John's wife. I am trying to figure out how to balance all that is going on in my life right now.
I am getting closer to making some decisions...about life, about work, about Charly...and about home. I suppose that's why I've struggled with what to post on the blog and what to share...it's sort of a "writers block".
Most of my nights are spent looking like this...
And I LOVE IT! I am so THANKFUL for all that I have. I know that answers will come soon, and I will be flowing with posts, information, and thoughts...for now, please be patient with me, and I will try so hard not to let you down. You have all been there for us for these past 6 1/2 months, and I couldn't do it without you! THANK YOU!!
Lots of Love
~Angie
Your story is amazing. And as another nicu mom, just wanted to share David Osmond Lonliest Walk lyrics
ReplyDeleteShe pushes L on that old elevator door
Her heart is broken, arms are bare
The doors are closing and she’s staring at the floor
There’s still a piece of her up there
It seems like yesterday she saw her on the screen
Painted a room and picked out names
But now she has to leave her under big machines
To keep alive her tiny frame
She’s on the way to her car, but its never felt this far
With each step she takes there’s another to follow
And one more ache, one more tear to swallow
She’s gotta keep moving
Forget about the bruising inside
Through the loneliest walk of her life
He pushes up the board they’ve tied onto his shoulders
He bears, with dignity, disgrace
He hears the jeering and the wind is getting colder
Tastes the blood upon his face
His body bruised and back still open from the scourges
The consequence of wicked men
He knows no man on earth has ever deserved this
But still he bears it all for them
And He keeps moving up the hill to do his fathers will
Withe each step he takes theres another to follow
and one more ache, one more tear to swallow
we all stand by and watch as the price is paid
Through the loneliest walks of his life
so we don’t feel alone in the night
we can have his hand holding the light
through the lowliest walks of our lives
Keep pushing through this lonely walk youre going through
Cause someones walked this way before
Link to lyrics http://www.davidosmond.com/?p=249
Hang in there!